We are preparing for our journey to Gainsville Sunday afternoon. We hope the Doctors at Shands will be able to provide more information regarding the Parkinsons. Tomorrow we meet with the entire care team at the rehab facility which will also hopefully give us a better look at the prognosis and tell us how Mom has been responding to the therapy. She continues to feel stronger and her attitude is such that she knows she needs to work hard to facilitate her release.
As you are all well aware the healthcare system is a cacophony of chaos and finger pointing. It's really a shame that our healthcare professionals aren't able to say or do things due to legalities and fear for their own well being. It will be great to have the entire team in a single room at once so know one will have to "get back to us". Since she has to go to Gainsville they tell us they have to release her from the facility and then, if needed re admit her her upon her return Monday night. They will not hold the room unless we pay for it which we are happy to do since we refuse to chance that we would have to go back to the 2nd floor. Since moving to this room the care has been far superior and we are grateful. It's also a great advantage to have a rather large private room since we always seem to have lots of family activity and visitors. She is staying by herself at nights but we have someone down there with her most days all late mornings through early evenings. It has been a bit of a struggle but we wouldn't want it any other way.
So hopefully we will know a bit more tomorrow but the waiting game continues. After Gainsville we should know even more then we move onwards towards the biopsy which is scheduled for the 23rd or 24th of this month.
I will try and update everyone tomorrow after our team meeting. In the mean time thanks for the support and the love. In spite of everything we all recognize our blessings and continue to remain as positive as possible.
Much Love!
Any positive updates on "Mom" are what we're all eager to hear. Don't let the confusion and fear, along with finger pointing, get to you. We live in a country that is way too litigation and liability crazy. And unfortunately that often slows progress. You all are in our thoughts and prayers. All the best with your Gainsville adventure.
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