Things are going pretty well at the Coble household. Mom is getting around pretty well, almost too well in fact. We continue to worry that she will not relax and take it easy. She wants to prove that she is well and is trying to do too much too soon. Her strength improves and her eating habits have been better as well. She is starting to add back a few pounds which makes us all happy to say the least.
Although she doesn't get around as well as she did prior to her hospitalization she is able to get out and do a few things. She visited Jan, got her nails done and is eager to do some shopping to get some clothes that fit better. She is running Dad ragged and we are trying to make arrangements to get him some time away to fish and take care of some personal errands. It has been a bit difficult to get specific times and schedules from the bevy of nurses and therapists appointments and I am going to try and get that all squared away today. They will tell us a day but not a time and with so many coming to the house we need to better organize.
Thanks to our many friends from St Stephens that have been provided tasty meals for Mom and Dad. We really appreciate all the love and support. Things are by no means back to normal but we are seeing progress and that is what we want. Mom will see her primary care physician this week and has appointments in Gainsville the first week of September and also on the 15th when we hope to get a better evaluation on the cocktail of medicines she is taking. She is still having some trouble sleeping and remains a bit restless throughout the day. She is getting better about using the walker but still needs to be oft reminded. Although we are taking it day by day she is hoping to feel up to returning to church Saturday night.
The rest of us are trying to resume our normal routines. It has been hardest on Dad. I don't think Superman himself could keep up with Mom's pace around the house. So far though she has done well and is adapting to the changes.
Hope to see you all soon. Thanks for everything. Much love!.
Tuesday, August 19, 2014
Thursday, August 14, 2014
August 14
Today is Mom's third day home from rehab and we are pleased to say she is doing really well. Her strength is getting better, she looks great and is eating much better than she did in the facility. There are indeed nothing more therapeutic than the comforts of home.
She is getting around really well, in fact to well. We worry that she will over exert herself and don't want her to do too much too soon. She has kept Dad busy doing things around the house and is trying really hard to return to her regular routines. Her goal is to put back on around 20 LBS and thanks to all the love and support of our church and their meal program I don't see that this will be much of a problem. Last night she dove into the large platter of brownies that were delivered before she dove into the pork tenderloin that was the main course. How great is it to be able to eat anything in any quantity without worry of gaining too much weight?
Dad has done a great job of keeping up with her meds and today sees the first visit from a nurse who will pop in and make sure she is doing well. PT and OT will be scheduled sometime today and they will both come by three times a week so she can continue to gain strength and balance. All in all we are extremely pleased with her progress and although she has a way to go we are encouraged by everything.
We go back to Gainsville on September 15th for a follow up with the neurologist and she will also she her primary care Dr. within the next couple of weeks. Right now I think she is more concerned with getting her hair and nails done than anything else. You gotta love her!
We are not sure what's on tap for the weekend. If she feels up to it we may take her to church Saturday night. I know there are a lot of people who have prayed and sent love over the past two months that would love to see her. Whatever happens we will just be happy that we no longer have to trek downtown to the Commons to see her. It is awesome to know that she is close by, at home and getting better each and every day. We now turn our attentions to our own sanity and recovery. As things seem to stabilize we are start to rid ourselves of that feeling of helplessness that has plagued us for the past two months. We remain cautious but have a sense of relief. We are comforted with the knowledge that Mom is able to look after herself to a certain degree and so far does not seem to need around the clock care as long as she continues on this same path. She his trying hard to grow accustom to using her walker and so far has not needed the wheelchair at all.
As things return to normal we want to share our thanks and gratitude once again for taking this ride with us. We are blessed in so many ways and grateful for all of you that have written and provided support.
She is getting around really well, in fact to well. We worry that she will over exert herself and don't want her to do too much too soon. She has kept Dad busy doing things around the house and is trying really hard to return to her regular routines. Her goal is to put back on around 20 LBS and thanks to all the love and support of our church and their meal program I don't see that this will be much of a problem. Last night she dove into the large platter of brownies that were delivered before she dove into the pork tenderloin that was the main course. How great is it to be able to eat anything in any quantity without worry of gaining too much weight?
Dad has done a great job of keeping up with her meds and today sees the first visit from a nurse who will pop in and make sure she is doing well. PT and OT will be scheduled sometime today and they will both come by three times a week so she can continue to gain strength and balance. All in all we are extremely pleased with her progress and although she has a way to go we are encouraged by everything.
We go back to Gainsville on September 15th for a follow up with the neurologist and she will also she her primary care Dr. within the next couple of weeks. Right now I think she is more concerned with getting her hair and nails done than anything else. You gotta love her!
We are not sure what's on tap for the weekend. If she feels up to it we may take her to church Saturday night. I know there are a lot of people who have prayed and sent love over the past two months that would love to see her. Whatever happens we will just be happy that we no longer have to trek downtown to the Commons to see her. It is awesome to know that she is close by, at home and getting better each and every day. We now turn our attentions to our own sanity and recovery. As things seem to stabilize we are start to rid ourselves of that feeling of helplessness that has plagued us for the past two months. We remain cautious but have a sense of relief. We are comforted with the knowledge that Mom is able to look after herself to a certain degree and so far does not seem to need around the clock care as long as she continues on this same path. She his trying hard to grow accustom to using her walker and so far has not needed the wheelchair at all.
As things return to normal we want to share our thanks and gratitude once again for taking this ride with us. We are blessed in so many ways and grateful for all of you that have written and provided support.
Tuesday, August 12, 2014
August 12
The day has arrived and Mom is currently on her way home. What's the over and under on the time before she decides to try and get up and clean something? I give it an hour tops!.
We still have a lot of scheduling to do with nurses and therapists but we remain cautious and happy simultaneously. It's going to be hard for her to relax and we pray that the welcoming change of scenery back into friendly confines will bring her peace.
We spent last night getting ready. Organizing pills and some slight rearranging of furniture to make passage a bit easier. Hopefully she will under stand that these changes were needed and accept them as positive. She has somewhat refused to yield her independence and doesn't always remember her limitations. Our hope is to keep her calm and relaxed and get her in the right mind to ask for help. Although we tell her we want to do these things she refuses to allow us to be "burdened" by her illness. I know that the many visitors we expect will help us bring this message to heart and do wonders for her spirit.
Tonight we will gather at the house and hopefully share a meal together for the first time in a long while. We are not sure what is ahead for us but we will stay the course and make she sure she gets whatever help she needs. I should have all the remaining details on home care later this morning. The Social Worker at the rehab has been great about lining everything up for us and making my life easier than I would have imagined.
So, onward to the next chapter. I will keep this blog active so you know what's going on. I hope to see so many of you soon. Much love always.
We still have a lot of scheduling to do with nurses and therapists but we remain cautious and happy simultaneously. It's going to be hard for her to relax and we pray that the welcoming change of scenery back into friendly confines will bring her peace.
We spent last night getting ready. Organizing pills and some slight rearranging of furniture to make passage a bit easier. Hopefully she will under stand that these changes were needed and accept them as positive. She has somewhat refused to yield her independence and doesn't always remember her limitations. Our hope is to keep her calm and relaxed and get her in the right mind to ask for help. Although we tell her we want to do these things she refuses to allow us to be "burdened" by her illness. I know that the many visitors we expect will help us bring this message to heart and do wonders for her spirit.
Tonight we will gather at the house and hopefully share a meal together for the first time in a long while. We are not sure what is ahead for us but we will stay the course and make she sure she gets whatever help she needs. I should have all the remaining details on home care later this morning. The Social Worker at the rehab has been great about lining everything up for us and making my life easier than I would have imagined.
So, onward to the next chapter. I will keep this blog active so you know what's going on. I hope to see so many of you soon. Much love always.
Monday, August 11, 2014
August 11th
Happy Monday. Well, the day is almost here. We are in the final count down and gathering all the information in order to be able to bring Mom home tomorrow. As soon as the Social Worker gets in I will get all the details and the calls will begin to secure nursing and therapy specialist for home care.
Our main concern with this is now up to Mom. If she will accept the fact that she cannot perform duties like she once did we should be alright. However, she often forgets or just plan ignores advice and likes to get up and move around. She appears to be much stronger but still requires the use of a walker or at times a wheel chair. We had to make a few minor adjustments to the house which I am sure she will be against but she is going to have to make some concessions. Hopefully she will be agreeable since it is what we need to do in order to get her home.
I think at this point acceptance seems to be the biggest issue. I believe we will be able to regulate her meds and she will be able to have a decent quality of life if she would just accept to herself that a few changes will have to be made.
It has been two months now since the ordeal began. Her deterioration has been rapid to say the least but hopefully we are on the mend. Although we are grateful for the care she has received we will not miss the Commons Rehab Facility. There have been ups and downs but mostly the people there have been great. Our lives have taken some major turns and all the drives downtown and early mornings have taken their toll on us all. However we are glad that we have been able to be there for Mom and I know that she will, in the near future, be able to understand how all of this has been necessary to her long term recovery. We are all a bit frightened about her coming home but hopefully we will be able to make the arrangements needed to have around the clock care. Her safety is our main concern. As mentioned above, acceptance on her behalf is key.
Once we get her home and settled I believe that visitors will be encouraged. She seems to brighten when other people are around. We also have a wonderful church community which will provide meals for a few weeks and plenty of us will help out helping around the house and cleaning etc.
I will try and provide another update on Wednesday. In the meantime wish us well and keep the prayers coming. God bless you all.
Our main concern with this is now up to Mom. If she will accept the fact that she cannot perform duties like she once did we should be alright. However, she often forgets or just plan ignores advice and likes to get up and move around. She appears to be much stronger but still requires the use of a walker or at times a wheel chair. We had to make a few minor adjustments to the house which I am sure she will be against but she is going to have to make some concessions. Hopefully she will be agreeable since it is what we need to do in order to get her home.
I think at this point acceptance seems to be the biggest issue. I believe we will be able to regulate her meds and she will be able to have a decent quality of life if she would just accept to herself that a few changes will have to be made.
It has been two months now since the ordeal began. Her deterioration has been rapid to say the least but hopefully we are on the mend. Although we are grateful for the care she has received we will not miss the Commons Rehab Facility. There have been ups and downs but mostly the people there have been great. Our lives have taken some major turns and all the drives downtown and early mornings have taken their toll on us all. However we are glad that we have been able to be there for Mom and I know that she will, in the near future, be able to understand how all of this has been necessary to her long term recovery. We are all a bit frightened about her coming home but hopefully we will be able to make the arrangements needed to have around the clock care. Her safety is our main concern. As mentioned above, acceptance on her behalf is key.
Once we get her home and settled I believe that visitors will be encouraged. She seems to brighten when other people are around. We also have a wonderful church community which will provide meals for a few weeks and plenty of us will help out helping around the house and cleaning etc.
I will try and provide another update on Wednesday. In the meantime wish us well and keep the prayers coming. God bless you all.
Friday, August 8, 2014
August 8th
Things pretty much remain the same. Mom is still struggling a bit and still has a few delusions but we are told that Tuesday looks good to bring her home. There are a few things we need to do around the house to prepare but I think otherwise we are ready.
This weekend she will spend doing her PT and we hope her strength will continue to grow. I know she can't wait to her home and we feel the same way. Now the task of finding home care nursing and PT is upon us but the Social Worker at the Rehab has been great to work with. Will spend some time this weekend getting our affairs in order.
Not much to talk about today that hasn't already been said. Onward and Godspeed.
This weekend she will spend doing her PT and we hope her strength will continue to grow. I know she can't wait to her home and we feel the same way. Now the task of finding home care nursing and PT is upon us but the Social Worker at the Rehab has been great to work with. Will spend some time this weekend getting our affairs in order.
Not much to talk about today that hasn't already been said. Onward and Godspeed.
Tuesday, August 5, 2014
August 5th
Mom is going stir crazy and it looks like we will bring her home now as soon as she is cleared from the CDIF virus. She has her last dose of antibiotics Sunday and we hope she will be cleared on Monday. Hopefully by Tuesday we will be able to get her home. Now, the great news is that we discovered that her secondary insurance will indeed cover up to 200 shifts for home care. The shifts, depending on the service are either 8 or 12 hours per and they will make sure she is well cared for, pills taken etc. We are so grateful to have found this.
The antibiotics for CDIF are really powerful and are causing her a lot of delusions and dreams which at times she has trouble separating from reality. We are on the home stretch but the next 5-7 days are going to be tough. She usually has the worst time in the morning when waking and settles down by mid morning when PT and visitors arrive. The Dr's tell us all of this is pretty normal and have given us no reason for concern.
She remains pretty weak and still has a way to go being able to fend for herself but Insurance will also cover three PT and three OT visits per week at home so we will be able to keep up with her exercises and strength conditioning. I think what will prove most difficult is her willingness to let go of her many everyday chores and tasks that she has grown accustomed to. Letting someone else take charge has never been her strong suit and our worse fear is that her stubbornness will trump her actual ability to do these things and she will fall and hurt herself. Hopefully she will be so happy to get home that all of this will become moot and she will be able to settle into a comfortable and peaceful lifestyle.
This whole ordeal has been quite the journey. At times things seem really dark and then a few rays of sunshine poke through such as the news we received about home care. It may from a physical standpoint be a better idea for her to remain in rehab for awhile but I am not sure her mental state could handle too much longer. We are knocking on the door of two months since this journey began and although we all remain positive and strong it is really starting to take it's toll on everyone. Again I want to thank everyone for all of their prayers and support. We know how fortunate we are to have the family and friends that we do. We will be clinging to this knowledge as we traverse the rocky terrain of next week.
As our Pastor Nathan would say, God loves you and so do we!
The antibiotics for CDIF are really powerful and are causing her a lot of delusions and dreams which at times she has trouble separating from reality. We are on the home stretch but the next 5-7 days are going to be tough. She usually has the worst time in the morning when waking and settles down by mid morning when PT and visitors arrive. The Dr's tell us all of this is pretty normal and have given us no reason for concern.
She remains pretty weak and still has a way to go being able to fend for herself but Insurance will also cover three PT and three OT visits per week at home so we will be able to keep up with her exercises and strength conditioning. I think what will prove most difficult is her willingness to let go of her many everyday chores and tasks that she has grown accustomed to. Letting someone else take charge has never been her strong suit and our worse fear is that her stubbornness will trump her actual ability to do these things and she will fall and hurt herself. Hopefully she will be so happy to get home that all of this will become moot and she will be able to settle into a comfortable and peaceful lifestyle.
This whole ordeal has been quite the journey. At times things seem really dark and then a few rays of sunshine poke through such as the news we received about home care. It may from a physical standpoint be a better idea for her to remain in rehab for awhile but I am not sure her mental state could handle too much longer. We are knocking on the door of two months since this journey began and although we all remain positive and strong it is really starting to take it's toll on everyone. Again I want to thank everyone for all of their prayers and support. We know how fortunate we are to have the family and friends that we do. We will be clinging to this knowledge as we traverse the rocky terrain of next week.
As our Pastor Nathan would say, God loves you and so do we!
Monday, August 4, 2014
August 4
Sorry for the delay in posting. I took some time this weekend to decompress and watch some baseball in St. Pete. Found some time to just sit alone poolside and listen to some music while trying to get me head in a good place. Work has been hectic and life is happening fast. I am told that I am of no use to anyone if I myself remains in a state of chaos. The weekend helped. I got lots of rest and slept in each day like a high schooler.
BTW, Happy birthday to Randy who celebrates his 45th today. Time flies!
As you have probably already heard Mom was given good news from the oncologist. He feels that the surgery to remove the lump was successful and that currently due to Mom's condition there is nothing more left to be done. There is only a very slight 10% chance that it had spread and she is to frail to undergo any additional surgeries. The risk being so low he feels that we stay put for now and in two months we will consider radiation therapy and a precaution to it's return. The Coble family needed some good news and this was it. Needless to say we are extremely grateful and slept a lot better Friday night upon receiving the news. Now we start the journey down the path of getting Mom's medicines aligned to help deal better with her Parkinsons.
The excitement of all the Dr's appts. has taken a toll on her. This combined with the steady diet of antibiotics for her CDIF has left her a bit bewildered. She has regained her appetite and seems to be eating much better now. She also continues to brighten up when she receives calls, cards and visitors. My goal for this week is to get a list of all of her current medicines over to her Neurologist in Gainsville and see if we can't find a more suitable cocktail to ease her anxiety and tremors. With the cancer scare behind us our goals are to regulate her meds and increase her strength. She has another week of the antibiotics and then as soon as she is strong enough our goal is to get her home. This is easier than it sounds however.
Insurance will pay for PT and OT three times a week but it doesn't look like they cover any home nursing care. We are researching our options this week and hope to find a solution that will allow her to return home sooner rather than later. Her mental state is as much of a concern to us as her physical state and she is really going stir crazy in the rehab. At times she gets angry with us but unfortunately, at this point, we have no other options until she is cleared from CDIF and is able to get up and move around a little. As stated before the lumpectomy set her back more than we would have ever imagined it would. She is still rather week and needs to rely on nursing care to help her with her basic daily needs.
So, another long week of recovery is ahead. We don't know what is in store but we continue to pray and hope for the best. I can't believe it has been almost two months since we started this journey. Although it continues to take it's toll we are all doing our best to remain positive and strong. Thanks for being there with us and for all of your love and support. I will keep you posted throughout the week and know that we love you all.
BTW, Happy birthday to Randy who celebrates his 45th today. Time flies!
As you have probably already heard Mom was given good news from the oncologist. He feels that the surgery to remove the lump was successful and that currently due to Mom's condition there is nothing more left to be done. There is only a very slight 10% chance that it had spread and she is to frail to undergo any additional surgeries. The risk being so low he feels that we stay put for now and in two months we will consider radiation therapy and a precaution to it's return. The Coble family needed some good news and this was it. Needless to say we are extremely grateful and slept a lot better Friday night upon receiving the news. Now we start the journey down the path of getting Mom's medicines aligned to help deal better with her Parkinsons.
The excitement of all the Dr's appts. has taken a toll on her. This combined with the steady diet of antibiotics for her CDIF has left her a bit bewildered. She has regained her appetite and seems to be eating much better now. She also continues to brighten up when she receives calls, cards and visitors. My goal for this week is to get a list of all of her current medicines over to her Neurologist in Gainsville and see if we can't find a more suitable cocktail to ease her anxiety and tremors. With the cancer scare behind us our goals are to regulate her meds and increase her strength. She has another week of the antibiotics and then as soon as she is strong enough our goal is to get her home. This is easier than it sounds however.
Insurance will pay for PT and OT three times a week but it doesn't look like they cover any home nursing care. We are researching our options this week and hope to find a solution that will allow her to return home sooner rather than later. Her mental state is as much of a concern to us as her physical state and she is really going stir crazy in the rehab. At times she gets angry with us but unfortunately, at this point, we have no other options until she is cleared from CDIF and is able to get up and move around a little. As stated before the lumpectomy set her back more than we would have ever imagined it would. She is still rather week and needs to rely on nursing care to help her with her basic daily needs.
So, another long week of recovery is ahead. We don't know what is in store but we continue to pray and hope for the best. I can't believe it has been almost two months since we started this journey. Although it continues to take it's toll we are all doing our best to remain positive and strong. Thanks for being there with us and for all of your love and support. I will keep you posted throughout the week and know that we love you all.
Tuesday, July 29, 2014
July 29
It's been a rough couple of days. Mom has had a rough time coming back after her biopsy and has since again contracted the CDIF virus which will see her back on antibiotics and quarantined in her room for 14 days. Her spirits are poor and I can't blame her. The feeling of helplessness and her lack of independence are her two worst enemies currently.
This morning they are performing an ultra sound to check her gall bladder. She continues to have no appetite and has lost a lot of weight. Although her cognitive skills remain pretty sharp her inability to manage all of the information also leaves her very frustrated. It seems as if each morning brings with it a whole new set of issues and challenges.
I have gotten to know the nurses at the facility pretty well over the past few weeks and although they are concerned they remain positive that a positive outcome is probable. It is difficult to learn to trust those that are trained in these matters but I feel she is in good hands. We continue to ask questions and try to understand the circumstances but we are not doctors and need to rely on them to guide us. We want what is best for Mom and everyone has an opinion on what needs to be done which overwhelms me each day. Not having the answers seems to be my worst enemy. Juggling between so many doctors is also problematic. So many are involved and the medical sciences are not always exact so experimentation in diagnosis is sometimes all that can be done. Our chief concern currently is just getting Mom fed and strong while trying to help her maintain her sanity. She is frightened and helpless and it hurts that we cannot do anything about it.
Our follow up with the doctor who performed the biopsy is Thursday at 1:30. He has confirmed that what he removed was cancerous so now we need to find out what happens next. There was no widespread areas and he called it local not invasive. The waiting game continues.
We are all doing as well as can be expected. I am so proud of Dad and his ability to cope with these difficult times. Dad, I hope you know what an inspiration you continue to be to me and to all of us. It is of comfort knowing that we are all together for this and although we did not wish these circumstances we will take the trip together and do all that we can to help each other out. We all struggle with the task of managing our current responsibilities and doing what we can to try and comfort and watch over Mom. We will follow your example.
So far we have all been pretty good about taking care of ourselves as well. We are no good to anyone if we ourselves are not up to the task and it's important that we find ways to ease our own minds. I can't remember a time in my life that I have prayed so much. It's hard to clear the mind at times from all thats happening with Mom, work and life. Prayer and meditation certainly help.
That's the latest. We have a lot on our plates for the rest of the week as we continue to play the waiting game. As always, thanks for all the love and support. It means the world to us and know that we all love you too.
This morning they are performing an ultra sound to check her gall bladder. She continues to have no appetite and has lost a lot of weight. Although her cognitive skills remain pretty sharp her inability to manage all of the information also leaves her very frustrated. It seems as if each morning brings with it a whole new set of issues and challenges.
I have gotten to know the nurses at the facility pretty well over the past few weeks and although they are concerned they remain positive that a positive outcome is probable. It is difficult to learn to trust those that are trained in these matters but I feel she is in good hands. We continue to ask questions and try to understand the circumstances but we are not doctors and need to rely on them to guide us. We want what is best for Mom and everyone has an opinion on what needs to be done which overwhelms me each day. Not having the answers seems to be my worst enemy. Juggling between so many doctors is also problematic. So many are involved and the medical sciences are not always exact so experimentation in diagnosis is sometimes all that can be done. Our chief concern currently is just getting Mom fed and strong while trying to help her maintain her sanity. She is frightened and helpless and it hurts that we cannot do anything about it.
Our follow up with the doctor who performed the biopsy is Thursday at 1:30. He has confirmed that what he removed was cancerous so now we need to find out what happens next. There was no widespread areas and he called it local not invasive. The waiting game continues.
We are all doing as well as can be expected. I am so proud of Dad and his ability to cope with these difficult times. Dad, I hope you know what an inspiration you continue to be to me and to all of us. It is of comfort knowing that we are all together for this and although we did not wish these circumstances we will take the trip together and do all that we can to help each other out. We all struggle with the task of managing our current responsibilities and doing what we can to try and comfort and watch over Mom. We will follow your example.
So far we have all been pretty good about taking care of ourselves as well. We are no good to anyone if we ourselves are not up to the task and it's important that we find ways to ease our own minds. I can't remember a time in my life that I have prayed so much. It's hard to clear the mind at times from all thats happening with Mom, work and life. Prayer and meditation certainly help.
That's the latest. We have a lot on our plates for the rest of the week as we continue to play the waiting game. As always, thanks for all the love and support. It means the world to us and know that we all love you too.
Friday, July 25, 2014
July 25th
Thanks to the Sisters in Michigan for the new puppy addition to the family. XOXOXO
Mom has been resting a lot since she returned from the biopsy. We were told and expected that this would happen. She is not happy about the down time and the small step backwards with her recovery. We are hoping that we will hear back from the Dr. regarding the biopsy today but should hear something by Monday at the latest. This has been a difficult week for us all.
Mom woke up this morning with a sore toe and they believe she may have gout now on top of everything else. We seem to keep experiencing these bumps in the road on regular intervals. Her appetite continues to be weak and her spirits come and go. She doesn't have much desire to watch TV or read and I know it's getting tough for her to occupy her time.
One thing that seems to cheer her up above all else is hearing from you all. When she is able she likes to catch up and we know you will all share happy news that will lift her spirits. We are trying to maintain an atmosphere of positivity to lift her spirits as best we can. Visitors are welcome also but you may want to call Dad prior to your visit to make sure she is awake.
Randy, Susan, Brenda and I are doing our best to resume a normal life, work doesn't acknowledge crisis so we are trying to stay busy while juggling visits to Mom and trying to keep an eye on Dad. Dad remains strong and has handled the situation extremely well however it's taking it's toll on everyone. If the Coble family has nothing else we do have resolve and a stubbornness that will see this thing through to the end. We will stop at nothing less than getting Mom back home and resting comfortably while resuming a somewhat normal lifestyle. The prognosis remains positive and we just need to keep reminding ourselves that this too shall pass.
The hardest part of everything is relinquishing control. The serenity prayer is getting worn out but we know it holds true, we are all doing pretty well with accepting those things that we cannot control however it's often frustrating to say the least. Thy will not ours be done!
We have spoken to the social worker about home care and were hoping that perhaps by the end of next week we can get her back home. Hopefully she will be able to resume her PT soon but this morning she was still pretty tired.
That's it for now. As soon as we receive biopsy feedback I will post again. In the meantime our heartfelt love and gratitude you you all.
Wednesday, July 23, 2014
July 23rd
We just returned from the biopsy at Florida Hospital and the news is both good and bad. Mostly good. They did indeed remove a lump which the Dr confirms as cancer, however, he feels that he got it all. Now the tricky part will be determined through the actual study of the lump. If this lump were locate in the breast proper they would have removed the breast and been done with it. Since the growth was so tight against the sternum and nestled against tissue and muscle there is a slight possibility that it could have spread. We will know more when the study is completed in a couple of days.
He feels that this is not a serious cancer, if you could actually say that about cancer, and we are schedule for a follow up next week with him as well as an initial appt with an oncologist to discuss our options for follow up. A mastectomy may be required in which case he feels that will be all that is needed. Although we are happy to have these initial reports and tests concluded we are again in a hurry up and wait defense.
Mom has responded to the news well and went back to her room to get some well needed and deserved rest. She did not sleep at all last night and I know she is happy to have this initial procedure behind her. She continues to gain strength and this procedure should not cause any addition setbacks other than her missing a few days of PT.
We are now in the process of collecting information to determine our options for home care and hope to bring Mom home sometime as early as Monday of next week. She will continue to need PT and some care but is getting around well enough that she should be able to do fine with a few minor home alterations which she, needless to say if you know Mom, is not too happy about. Our main goal now is to try and create an environment that is comfortable and nurturing to her recovery so that moving forward she can continue with a good quality of life. I don't have to tell you she is stubborn but we need to continue to remind her to make use of the tools available to her. When I arrived this morning at 5 AM to pick her up I was informed that they found her on the floor again last night when she decided to get up without her walker and without calling for help. She is determined to fight for her total independence so we need to keep an eye on her.
I am sure that she will be sleepy and worn out the next day or two. Your calls and cards and flowers continue to work wonders for her spirit. A visit from Pastor Jared yesterday was well received as well. She has been able to look at her Facebook and her email so feel free to drop her a not at either.
The next time I speak to you all I should have more definitive news to report. In the meantime prayers are welcomed and appreciated.
God bless and much love!.
He feels that this is not a serious cancer, if you could actually say that about cancer, and we are schedule for a follow up next week with him as well as an initial appt with an oncologist to discuss our options for follow up. A mastectomy may be required in which case he feels that will be all that is needed. Although we are happy to have these initial reports and tests concluded we are again in a hurry up and wait defense.
Mom has responded to the news well and went back to her room to get some well needed and deserved rest. She did not sleep at all last night and I know she is happy to have this initial procedure behind her. She continues to gain strength and this procedure should not cause any addition setbacks other than her missing a few days of PT.
We are now in the process of collecting information to determine our options for home care and hope to bring Mom home sometime as early as Monday of next week. She will continue to need PT and some care but is getting around well enough that she should be able to do fine with a few minor home alterations which she, needless to say if you know Mom, is not too happy about. Our main goal now is to try and create an environment that is comfortable and nurturing to her recovery so that moving forward she can continue with a good quality of life. I don't have to tell you she is stubborn but we need to continue to remind her to make use of the tools available to her. When I arrived this morning at 5 AM to pick her up I was informed that they found her on the floor again last night when she decided to get up without her walker and without calling for help. She is determined to fight for her total independence so we need to keep an eye on her.
I am sure that she will be sleepy and worn out the next day or two. Your calls and cards and flowers continue to work wonders for her spirit. A visit from Pastor Jared yesterday was well received as well. She has been able to look at her Facebook and her email so feel free to drop her a not at either.
The next time I speak to you all I should have more definitive news to report. In the meantime prayers are welcomed and appreciated.
God bless and much love!.
Saturday, July 19, 2014
July 19
Were up at the Rehab center spending some time with Mom this Saturday. She just took off for her daily PT. She is in good spirits after a chat yesterday with Pastor Nathan whos super power is the ability to put a smile on anyone's face. We are grateful to him for his presence and guidance through this stretch of our lives.
Monday we take Mom for her blood work and Wednesday we are scheduled for the biopsy. After she recovers from the biopsy we are looking at the possibility of getting her back home. This morning she looks great and is getting around really well. Balance is the only real concern the PT has and she continues to work on this with her.
We are expecting record crowds today here in her room. Many family and friends plan on stopping by and Mom is now live on her laptop and plans to try and monitor Facebook and Email. God willing the wi fi here continues to work properly and she doesn't have issues staying logged on.
I hope you all have a great weekend. Much love.
Thursday, July 17, 2014
July 17th
After the positive vibes we received from Gainsville our focus now turns to the upcoming biopsy which is scheduled for next Wednesday.
This procedure is weighing heavy on us all but especially on Mom's mind in particular. She had a rough time with it yesterday and wants nothing more than to return home. We are again in hurry up and wait mode until we know more after the biopsy.
We are doing all we can to raise her spirits and will be setting up command central in her room. I am working on getting a laptop set up so she will have some more access to the outside world. She misses everyone terribly and maybe access to Facebook and email will help her stay better connected. Hopefully this will be done by tomorrow if I can figure out the chaos that is her password situation and get things up and running.
If you feel so inclined you can send messages to her Facebook and I will make sure she is able to access them all. She has received a bunch of cards and well wishes and they always cheer her up. Deep dpwn she knows this is the best plan of action to continue rehab but I know she is tiring of the situation and we all know there is no place like home.
Dad continues to spend a lot of time with her and we are all trying to get down there as much as possible also. I know Dad misses her being at home as do we all. Her progress has been tremendous so hopefully we are on the home stretch and in a week or two we will be able to arrange for some home care so she can resume a somewhat normal life at home.
We are all big believers in the power of prayer and are doing our best to encourage Mom to stay positive during this trying time. We also believe a positive attitude will help in the recovery process but the fact that there is not a lot we can do about it is the most frustrating thing of all.
This weekend we will, weather permitting, try and get her out a bit around Lake Eola for some fresh air. Once she has more computer access hopefully she will be cheered by being able to communicate more with everyone.
A busy week ahead awaits us. Thanks for taking the journey with us. Much love to you all. Peace.
This procedure is weighing heavy on us all but especially on Mom's mind in particular. She had a rough time with it yesterday and wants nothing more than to return home. We are again in hurry up and wait mode until we know more after the biopsy.
We are doing all we can to raise her spirits and will be setting up command central in her room. I am working on getting a laptop set up so she will have some more access to the outside world. She misses everyone terribly and maybe access to Facebook and email will help her stay better connected. Hopefully this will be done by tomorrow if I can figure out the chaos that is her password situation and get things up and running.
If you feel so inclined you can send messages to her Facebook and I will make sure she is able to access them all. She has received a bunch of cards and well wishes and they always cheer her up. Deep dpwn she knows this is the best plan of action to continue rehab but I know she is tiring of the situation and we all know there is no place like home.
Dad continues to spend a lot of time with her and we are all trying to get down there as much as possible also. I know Dad misses her being at home as do we all. Her progress has been tremendous so hopefully we are on the home stretch and in a week or two we will be able to arrange for some home care so she can resume a somewhat normal life at home.
We are all big believers in the power of prayer and are doing our best to encourage Mom to stay positive during this trying time. We also believe a positive attitude will help in the recovery process but the fact that there is not a lot we can do about it is the most frustrating thing of all.
This weekend we will, weather permitting, try and get her out a bit around Lake Eola for some fresh air. Once she has more computer access hopefully she will be cheered by being able to communicate more with everyone.
A busy week ahead awaits us. Thanks for taking the journey with us. Much love to you all. Peace.
Tuesday, July 15, 2014
July 15th
We had a very good, encouraging and productive visit to Gainsville. The trip itself was quite smooth and Mom enjoyed getting out of the room for awhile and traveled well.
We met with the DR. yesterday morning and we all really liked her a lot. She was incredibly knowledgable and had a really great bedside manner that was both realistic and positive. Overall she feels that there is a lot of room for improvement but due to all the additional complications we will have to wait until a more accurate diagnosis can be completed. The pneumonia proved a big setback and the upcoming lumpectomy is also standing in the way of getting an accurate read on her Parkinsons. Once the lumpectomy is behind us and she is able to rehab from that we will be going back to Gainsville for more tests and at that time a more precise plan of action will be put in place.
The Dr. felt that there is a lot of room for changes to her medicine and is all Parkinsons cases getting the proper dosage and mix is often a hit or miss proposition. In other words she is diagnosing Parkinsons but feels that she will be able to treat it and Mom should be able to continue living a somewhat comfortable life.
Mom still has a way to go in gaining her strength but the results of the past week have been amazing and we are being told that all of the setbacks have been as a result of the Parkinsons not allowing the body to heal as quickly as normal. We are told that all of the symptoms she has experienced are normal and not anything additional that we should be concerned with.
Due to her lack of strength and age she is recommending we speak to the surgeon performing the lumpectomy and advises that if her breast needs to be removed or any additional surgery is needed we consider having it done at the same time as the lumpectomy so she only needs to be put under once. Obviously a surgery of this type will provide yet another setback in her recovery but again we are told that this is normal and shouldn't provide a real big setback. We are scheduled to meet with the surgeon and his team next Monday the 21st and assuming Mom continues gaining strength the surgery is scheduled for the 23rd of this month.
The facility in Gainsville is top notch and the Dr. was incredible. We feel like we are finally in good hands and getting somewhere. Even though uncertainty lingers we are getting some answers and direction that we feel we can trust and move forward with. It will be a series of steps. We can't predict the outcome of the lumpectomy but once that is behind us we will be able to start looking at the proper medicines and dosages. Once all this is done she has recommended at least part time care at the house until we are able to make things comfortable for her and she is able to get around a little better.
Mom's attitude seems to also be growing in strength and she is eager to get on with rehab. He goal is to get out of there as soon as possible and she seems willing to do whatever it takes. We appear to have already leaped over the first hurdle which was the CDIF virus she contracted. It is gone and she will now be able to resume using the PT room for her therapy instead of having it in her room. Her appetite has not yet returned and she has lost a lot of weight but the Dr did not seem to concerned as again this was somewhat expected. We are however a bit concerned and doing what we can to provide tasty meals and high protein snacks for her.
We were all really proud of Mom and how she handled the travel to Gainsville. I know it wasn't easy but she did well. She still has a little problem sleeping at night and her tailbone is still tender from a fall she had a few weeks back and this is causing a bit of trouble getting comfortable at night. The care on the first floor continues to be good and we now have a more defined schedule for her pills which we are keeping an eye on to make sure they are administered in a timely fashion.
The Dr. assured Mom that rehab was the best option for her and reminded us how lucky and fortunate we are to be in a position to take advantage of it. Looks like at least two more weeks but will know more after the upcoming surgery.
Mom is up and alert if anyone would like to reach out to her. She has received quite a few cards and flowers and phone calls and we all thank you so much for your prayers and concerns. It has been difficult getting in touch with everyone so I hope this blog is doing it's job and keeping you all up to date. We apologize for the informality but I know you all understand. The Cobles are trying to settle into a groove that allows us to resume our regular responsibilities and still be able to spend as much time with Mom as possible.
One of my greatest childhood memories involves the MLB All Star Game and tonight Dad will come over to watch with me. I am looking forward to it.
God bless you all and We will talk to you soon.
We met with the DR. yesterday morning and we all really liked her a lot. She was incredibly knowledgable and had a really great bedside manner that was both realistic and positive. Overall she feels that there is a lot of room for improvement but due to all the additional complications we will have to wait until a more accurate diagnosis can be completed. The pneumonia proved a big setback and the upcoming lumpectomy is also standing in the way of getting an accurate read on her Parkinsons. Once the lumpectomy is behind us and she is able to rehab from that we will be going back to Gainsville for more tests and at that time a more precise plan of action will be put in place.
The Dr. felt that there is a lot of room for changes to her medicine and is all Parkinsons cases getting the proper dosage and mix is often a hit or miss proposition. In other words she is diagnosing Parkinsons but feels that she will be able to treat it and Mom should be able to continue living a somewhat comfortable life.
Mom still has a way to go in gaining her strength but the results of the past week have been amazing and we are being told that all of the setbacks have been as a result of the Parkinsons not allowing the body to heal as quickly as normal. We are told that all of the symptoms she has experienced are normal and not anything additional that we should be concerned with.
Due to her lack of strength and age she is recommending we speak to the surgeon performing the lumpectomy and advises that if her breast needs to be removed or any additional surgery is needed we consider having it done at the same time as the lumpectomy so she only needs to be put under once. Obviously a surgery of this type will provide yet another setback in her recovery but again we are told that this is normal and shouldn't provide a real big setback. We are scheduled to meet with the surgeon and his team next Monday the 21st and assuming Mom continues gaining strength the surgery is scheduled for the 23rd of this month.
The facility in Gainsville is top notch and the Dr. was incredible. We feel like we are finally in good hands and getting somewhere. Even though uncertainty lingers we are getting some answers and direction that we feel we can trust and move forward with. It will be a series of steps. We can't predict the outcome of the lumpectomy but once that is behind us we will be able to start looking at the proper medicines and dosages. Once all this is done she has recommended at least part time care at the house until we are able to make things comfortable for her and she is able to get around a little better.
Mom's attitude seems to also be growing in strength and she is eager to get on with rehab. He goal is to get out of there as soon as possible and she seems willing to do whatever it takes. We appear to have already leaped over the first hurdle which was the CDIF virus she contracted. It is gone and she will now be able to resume using the PT room for her therapy instead of having it in her room. Her appetite has not yet returned and she has lost a lot of weight but the Dr did not seem to concerned as again this was somewhat expected. We are however a bit concerned and doing what we can to provide tasty meals and high protein snacks for her.
We were all really proud of Mom and how she handled the travel to Gainsville. I know it wasn't easy but she did well. She still has a little problem sleeping at night and her tailbone is still tender from a fall she had a few weeks back and this is causing a bit of trouble getting comfortable at night. The care on the first floor continues to be good and we now have a more defined schedule for her pills which we are keeping an eye on to make sure they are administered in a timely fashion.
The Dr. assured Mom that rehab was the best option for her and reminded us how lucky and fortunate we are to be in a position to take advantage of it. Looks like at least two more weeks but will know more after the upcoming surgery.
Mom is up and alert if anyone would like to reach out to her. She has received quite a few cards and flowers and phone calls and we all thank you so much for your prayers and concerns. It has been difficult getting in touch with everyone so I hope this blog is doing it's job and keeping you all up to date. We apologize for the informality but I know you all understand. The Cobles are trying to settle into a groove that allows us to resume our regular responsibilities and still be able to spend as much time with Mom as possible.
One of my greatest childhood memories involves the MLB All Star Game and tonight Dad will come over to watch with me. I am looking forward to it.
God bless you all and We will talk to you soon.
Thursday, July 10, 2014
July 10th
Some well needed good news from the care team.
The Cobles all met with the entire team today at the rehab facility and the progress Mom has made is being called good. We have everything we need now to move forward with our trip to Gainsville this Sunday and we will be able to move Mom back into the facility Monday night.
We are encouraged by the news that Mom is progressing. She still has some balance and lower strength issues but the upper half is in pretty good shape. She seems to be pretty sharp as well and walked away from the meeting happy about the results and in good spirits.
Tonight Brenda and Susan are taking Darlene out for dinner and drinks. She has been by Mom's side since she arrived last Saturday so I am happy that she will see something other than in the inside of a rehab facility while she is in town. Tomorrow night we will have the family back over to the Casa de Coble for another feast from the kitchen of Chez BC. Sunday Dad, Susan, Mom and I head to Gainsville.
Much Love to you all.
The Cobles all met with the entire team today at the rehab facility and the progress Mom has made is being called good. We have everything we need now to move forward with our trip to Gainsville this Sunday and we will be able to move Mom back into the facility Monday night.
We are encouraged by the news that Mom is progressing. She still has some balance and lower strength issues but the upper half is in pretty good shape. She seems to be pretty sharp as well and walked away from the meeting happy about the results and in good spirits.
Tonight Brenda and Susan are taking Darlene out for dinner and drinks. She has been by Mom's side since she arrived last Saturday so I am happy that she will see something other than in the inside of a rehab facility while she is in town. Tomorrow night we will have the family back over to the Casa de Coble for another feast from the kitchen of Chez BC. Sunday Dad, Susan, Mom and I head to Gainsville.
Much Love to you all.
Wednesday, July 9, 2014
July 9th 2014
Mom had a good day yesterday. Aunt Darlene was able to take her out and about in the downtown area. They went to Lake Eola and admired the beautiful park and fountain. Knowing them I bet there was a bit of shopping happening as well.
We are preparing for our journey to Gainsville Sunday afternoon. We hope the Doctors at Shands will be able to provide more information regarding the Parkinsons. Tomorrow we meet with the entire care team at the rehab facility which will also hopefully give us a better look at the prognosis and tell us how Mom has been responding to the therapy. She continues to feel stronger and her attitude is such that she knows she needs to work hard to facilitate her release.
As you are all well aware the healthcare system is a cacophony of chaos and finger pointing. It's really a shame that our healthcare professionals aren't able to say or do things due to legalities and fear for their own well being. It will be great to have the entire team in a single room at once so know one will have to "get back to us". Since she has to go to Gainsville they tell us they have to release her from the facility and then, if needed re admit her her upon her return Monday night. They will not hold the room unless we pay for it which we are happy to do since we refuse to chance that we would have to go back to the 2nd floor. Since moving to this room the care has been far superior and we are grateful. It's also a great advantage to have a rather large private room since we always seem to have lots of family activity and visitors. She is staying by herself at nights but we have someone down there with her most days all late mornings through early evenings. It has been a bit of a struggle but we wouldn't want it any other way.
So hopefully we will know a bit more tomorrow but the waiting game continues. After Gainsville we should know even more then we move onwards towards the biopsy which is scheduled for the 23rd or 24th of this month.
I will try and update everyone tomorrow after our team meeting. In the mean time thanks for the support and the love. In spite of everything we all recognize our blessings and continue to remain as positive as possible.
Much Love!
We are preparing for our journey to Gainsville Sunday afternoon. We hope the Doctors at Shands will be able to provide more information regarding the Parkinsons. Tomorrow we meet with the entire care team at the rehab facility which will also hopefully give us a better look at the prognosis and tell us how Mom has been responding to the therapy. She continues to feel stronger and her attitude is such that she knows she needs to work hard to facilitate her release.
As you are all well aware the healthcare system is a cacophony of chaos and finger pointing. It's really a shame that our healthcare professionals aren't able to say or do things due to legalities and fear for their own well being. It will be great to have the entire team in a single room at once so know one will have to "get back to us". Since she has to go to Gainsville they tell us they have to release her from the facility and then, if needed re admit her her upon her return Monday night. They will not hold the room unless we pay for it which we are happy to do since we refuse to chance that we would have to go back to the 2nd floor. Since moving to this room the care has been far superior and we are grateful. It's also a great advantage to have a rather large private room since we always seem to have lots of family activity and visitors. She is staying by herself at nights but we have someone down there with her most days all late mornings through early evenings. It has been a bit of a struggle but we wouldn't want it any other way.
So hopefully we will know a bit more tomorrow but the waiting game continues. After Gainsville we should know even more then we move onwards towards the biopsy which is scheduled for the 23rd or 24th of this month.
I will try and update everyone tomorrow after our team meeting. In the mean time thanks for the support and the love. In spite of everything we all recognize our blessings and continue to remain as positive as possible.
Much Love!
Monday, July 7, 2014
July 7, 2014
Not a lot to report. Mom is doing well and seems to grow stronger each day. Her mobility has improved a ton and it is great to see such good progress. She is tired of us all telling her she needs to eat but her appetite is returning as well. Hospital food is not very good, no surprise there, so we are trying to bring her things that she likes.
Darlene and Al arrived Saturday night and have provided a bright beam of sunshine into our lives. They are two of the nicest and most loving people you will ever meet and we are happy to see them always. Darlene is providing Mom with some calming girl talk and Dad has someone to hang out with as well. We had a nice dinner last night from Chez Brenda's kitchen and it was great to spend some time with the family. Hopefully next time Mom will be able top join us.
It was a crazy and stormy 4th weekend for us in Central Florida. BC and I lost two TV's, a modem and all of Direct TV due to the storm. Oh well, in the grand scheme of things we keep our eyes on what's most important and we remain grateful that Mom is recovering nicely.
I hope everyone reading is well and hanging in there. This year is flying by rapidly. Keep the thoughts, prayers and posts coming. Mom is able to check in at times on Facebook or we are always happy to pass along your wishes too. Much Love.
Darlene and Al arrived Saturday night and have provided a bright beam of sunshine into our lives. They are two of the nicest and most loving people you will ever meet and we are happy to see them always. Darlene is providing Mom with some calming girl talk and Dad has someone to hang out with as well. We had a nice dinner last night from Chez Brenda's kitchen and it was great to spend some time with the family. Hopefully next time Mom will be able top join us.
It was a crazy and stormy 4th weekend for us in Central Florida. BC and I lost two TV's, a modem and all of Direct TV due to the storm. Oh well, in the grand scheme of things we keep our eyes on what's most important and we remain grateful that Mom is recovering nicely.
I hope everyone reading is well and hanging in there. This year is flying by rapidly. Keep the thoughts, prayers and posts coming. Mom is able to check in at times on Facebook or we are always happy to pass along your wishes too. Much Love.
Friday, July 4, 2014
July 4th 2014
Happy 4th. We are disappointed that we are not able to have our annual BBQ tradition at Mom and Dads this year but grateful that Mom seems to continue to improve. Physically she seems to be growing stronger and certainly looks better as well. He mobility is also improving and motor skills too. We all really like her Physical Therapist Pam who has been really good with her. She tells us Mom has at very least another week here but she is encouraged by Mom's progress.
It's Friday morning as I write this and BC and I are outside Mom's room. At 7AM she is just now waking up. We were told she slept well last night. It was her third night staying by herself and she has been very accepting and encouraging Dad to go home and get some rest. The care on this floor continues to be good so we feel comfortable and secure.
Tomorrow Aunt Darlene and Uncle Al from Louisville fly in for a week. I know it's killing Mom not be able to to be home hosting them. We are all excited to see them and spend time no one more so than Dad. I am glad he has been able to go home and rest each night. He is doing well.
If anything good has come out of all of this it has been spending more time with my family. Randy and I send the morning together yesterday hanging a TV and had a lot of laughs. He spent last night with his weekly poker gang that he has postponed the past two weeks. I am grateful that we are all now able to start finding sometime to continue with out lives and divert our attention from the chaos. I've said it before but it's been awesome how we have all been able to support each other and I am really proud to be a member with full benefits of the Coble clan.
BC and I are going to spend some time this afternoon at Ken and Carries. We have not been able to spend as much time together as we usually do and have yet to determine if this is good or bad? (A little marital humor for you) We did manage to grab some dinner Wednesday night and I currently couldn't love her any more than I do. In the midst of all the chaos and uncertainty she remains the one thing I can be 100% certain about.
Shout out to Judy for helping out so much by keeping an eye on Mom and Dad's place and walking Kayla and to everyone for all the cards Flowers and posts. The picture above is of a beautiful bouquet from my Sisters Charlene, Jean and Faye which arrived yesterday and really cheered her up. Much love Sis's.
Have a wonderful 4th of July weekend. Will talk to you again soon.
Tuesday, July 1, 2014
July 1st 2014
It's been three weeks now since we started this ordeal. Time really flies.
As mentioned before Mom contracted the CDiv virus and had to be put on antibiotics. I understand this is commonly picked up by IV users. Her stomach has been upset and she has not been able to eat all of her regular meals so they had to put her back on fluids. The good news is that we saw immediate improvement and even her stomach seems to be feeling a bit better now.
The care she is receiving now on the first floor has been really good. I can't believe that one facility can house two completely different staffs. The 1st floor only has 9 patients so that helps. The fact that she is in a private room makes it easier for us all to spend time and I think she feels more secure as well. She has had a few moments when she gets upset and wants to leave but we are told this is pretty typical and the meds will sometimes have an adverse affect on peoples minds.
This morning she woke up and was looking forward to her physical therapy. We have also been able to bring in our own food for her so hopefully that will help ease the pain of having nothing but hospital food.
The Coble family continues to do well but it is taking it's toll on us. We have decided that we will stay with the Lutheran Towers since the circumstances have changed so drastically but it's located in downtown Orlando which is only about 10-15 miles from home but requires us to drive on the dreaded I4 and Colonial Drive. We worry about Dad not getting enough rest and are in the process of trying to build a schedule so we can all tend to our daily lives as well.
Throughout the turmoil we are grateful for a great many things. Our family is awesome and we have the love of so many people that have supported and wished us well. Huge shout out to Pastor Nathan who dropped by yesterday and offered support, encouragement, advice and lots of smiles and prayers. Also to our great friend Jan Decker who keeps tabs and stops by to cheer Mom up. Aunt Cathy for her calls and so many others that time does not permit me to mention now. Our familys form all walks of our lives have proved that Mom is loved by all and we remain grateful.
Mom's biopsy has moved to around July 23rd but we are still hopeful that she will visit Shands in Gainsville on the 14h for further Parkinsons treatment.
We are looking forward to a visit from Dad's sister Darlene and her husband Al whom arrive Saturday for a week. I know that will cheer her up as well as provide a diversion for Dad.
We remain hopeful and positive and if you would like to send Mom a note or pop in feel free. She usually is free in the afternoon after her PT. She is prone to naps at times but welcomes visitors and cards really cheer her up. We will all be around for the weekend of the 4th and hopefully enjoying a much calmer and more serene few days while Mom regains her strength.
God Bless you all and much love from the Cobles.
As mentioned before Mom contracted the CDiv virus and had to be put on antibiotics. I understand this is commonly picked up by IV users. Her stomach has been upset and she has not been able to eat all of her regular meals so they had to put her back on fluids. The good news is that we saw immediate improvement and even her stomach seems to be feeling a bit better now.
The care she is receiving now on the first floor has been really good. I can't believe that one facility can house two completely different staffs. The 1st floor only has 9 patients so that helps. The fact that she is in a private room makes it easier for us all to spend time and I think she feels more secure as well. She has had a few moments when she gets upset and wants to leave but we are told this is pretty typical and the meds will sometimes have an adverse affect on peoples minds.
This morning she woke up and was looking forward to her physical therapy. We have also been able to bring in our own food for her so hopefully that will help ease the pain of having nothing but hospital food.
The Coble family continues to do well but it is taking it's toll on us. We have decided that we will stay with the Lutheran Towers since the circumstances have changed so drastically but it's located in downtown Orlando which is only about 10-15 miles from home but requires us to drive on the dreaded I4 and Colonial Drive. We worry about Dad not getting enough rest and are in the process of trying to build a schedule so we can all tend to our daily lives as well.
Throughout the turmoil we are grateful for a great many things. Our family is awesome and we have the love of so many people that have supported and wished us well. Huge shout out to Pastor Nathan who dropped by yesterday and offered support, encouragement, advice and lots of smiles and prayers. Also to our great friend Jan Decker who keeps tabs and stops by to cheer Mom up. Aunt Cathy for her calls and so many others that time does not permit me to mention now. Our familys form all walks of our lives have proved that Mom is loved by all and we remain grateful.
Mom's biopsy has moved to around July 23rd but we are still hopeful that she will visit Shands in Gainsville on the 14h for further Parkinsons treatment.
We are looking forward to a visit from Dad's sister Darlene and her husband Al whom arrive Saturday for a week. I know that will cheer her up as well as provide a diversion for Dad.
We remain hopeful and positive and if you would like to send Mom a note or pop in feel free. She usually is free in the afternoon after her PT. She is prone to naps at times but welcomes visitors and cards really cheer her up. We will all be around for the weekend of the 4th and hopefully enjoying a much calmer and more serene few days while Mom regains her strength.
God Bless you all and much love from the Cobles.
Monday, June 30, 2014
June 30th
Just a quick update. We were able top move Mom to another floor into a private room. She spent her first night there last night and the attention she received was wonderful. There are only 9 other patients in the Rabid Rehab section so the response time and care has improved tremendously. We are grateful.
Sunday, June 29, 2014
June 29th
I am sure I will sound like the many "Helicopter Parents" I sometimes deal with but man, The Commons Orlando Lutheran Towers is not the place you want when it comes to the well being of a loved one. I am appalled by the lack of proactivity and the follow through by the majority of staff and this includes the administrative and management staff as well. Promises are made and never delivered. The most common thing you will here on this floor is "Let me get someone" I promise it is no exaggeration when I tell you the call buttons are useless. We have timed them on a few occasions at over a half an hour. Nurses and aids sit at the desk while the alarms beep and when asked if they are going to respond to it they say "I will get someone"
Yesterday it took us all we had just to get a couple of pillows. Patient charts seem to exist but are rarely read. People come and go and seem to have little idea of a patients needs or concerns. The lady in the bed next to us begged for some relief from her heartburn and was told that the soup she requested was not available. Nothing was done until an hour later when she threw up all over herself. This morning her meal was cold. Someone actually answered her call within 5 minutes and said she would "get someone", then left and nothing was done.
I hit the call button for someone to help Mom to the bathroom, after 5 minutes went to the desk where the nurse was standing there over a cart while the alarm sounded and asked her if she heard the alarm. Her reply, I just got here, "Let me get someone". I asked her why she herself couldn't respond to the call and after a 10 second look of complete puzzlement she walked with me to help Mom.
I know I am not a health care professional and I appreciate those that are. There are things happening here that I am not aware of and I know that there is no way someone will have their own personal assistant but there seems to be problems here that are beyond incompetent staff. The Asst Mgr. of the floor promised three things yesterday and only one was ever followed up on. Even the pillows she said she would get for us were never delivered. When we moved rooms the recliner we had to fight for was not moved with us, when I asked for it I was told we can't get one until Monday when maintenance is here. Thankfully the Housekeeper took charge and went and got one for us. We didn't even get a Let me get someone from the aid we asked but was basically told we are out of luck. No one here is willing to do anything that strays them from their routine or turns them away from whatever task they are involved with at the time.
Thankfully the Coble family remains strong and we have been here with Mom to make sure she is comfortable and has everything she needs. We allow 5 minutes for an alarm response and if no one comes we go get them. I feel bad for the people without local families that can ensure the well being of their loved one. We are doing what we can to help our room mate Venus Williams (no kidding) who unfortunately has had to fight for most anything she requests.
Tomorrow morning we are starting the long and bureaucratic struggle to transfer Mom closer to home. It looks like no matter what the outcome of her biopsy Thursday she will need therapy for a couple of more weeks and we just do not feel comfortable leaving her here. I am sure there is nothing we can do to bring to the attention of whomever the abhorrence that is this facility but we are going to do what we can to make sure that at the very least our experiences are well known by those who are considering sending a loved one to these facilities.
Mom woke up this morning like the last few and dressed and put on some makeup. Her appetite has been small lately and we attribute it to the CDIV virus she has picked up which we are told is pretty common amongst patients on IV's. Her stomach has been a bit upset but all in all she is doing pretty well physically. Mentally she wants the heck out of here.
Yesterday was a good day. She was up and dressed for the majority of the day and we had a lot of laughs. Susan and I stayed with her all afternoon and Dad once again stayed the night in the recliner. He is home today resting. A visit from Jan yesterday really cheered her up. Currently at 10:30AM she is taking a little nap. Tomorrow will be another big day as we navigate getting her moved but it will be good to have her closer to home instead of downtown here in Orlando. I am told that all rehab facilities are the same but I am hoping we find that the next will be more like our experience at Florida Hospital where the patients needs seemed to be priority number one not an inconvenience.
Thanks for letting me vent. Our next big hurdle after the move tomorrow is the biopsy Thursday. Your continued prayers, comments, calls and well wishes are appreciated and we love you all.
Yesterday it took us all we had just to get a couple of pillows. Patient charts seem to exist but are rarely read. People come and go and seem to have little idea of a patients needs or concerns. The lady in the bed next to us begged for some relief from her heartburn and was told that the soup she requested was not available. Nothing was done until an hour later when she threw up all over herself. This morning her meal was cold. Someone actually answered her call within 5 minutes and said she would "get someone", then left and nothing was done.
I hit the call button for someone to help Mom to the bathroom, after 5 minutes went to the desk where the nurse was standing there over a cart while the alarm sounded and asked her if she heard the alarm. Her reply, I just got here, "Let me get someone". I asked her why she herself couldn't respond to the call and after a 10 second look of complete puzzlement she walked with me to help Mom.
I know I am not a health care professional and I appreciate those that are. There are things happening here that I am not aware of and I know that there is no way someone will have their own personal assistant but there seems to be problems here that are beyond incompetent staff. The Asst Mgr. of the floor promised three things yesterday and only one was ever followed up on. Even the pillows she said she would get for us were never delivered. When we moved rooms the recliner we had to fight for was not moved with us, when I asked for it I was told we can't get one until Monday when maintenance is here. Thankfully the Housekeeper took charge and went and got one for us. We didn't even get a Let me get someone from the aid we asked but was basically told we are out of luck. No one here is willing to do anything that strays them from their routine or turns them away from whatever task they are involved with at the time.
Thankfully the Coble family remains strong and we have been here with Mom to make sure she is comfortable and has everything she needs. We allow 5 minutes for an alarm response and if no one comes we go get them. I feel bad for the people without local families that can ensure the well being of their loved one. We are doing what we can to help our room mate Venus Williams (no kidding) who unfortunately has had to fight for most anything she requests.
Tomorrow morning we are starting the long and bureaucratic struggle to transfer Mom closer to home. It looks like no matter what the outcome of her biopsy Thursday she will need therapy for a couple of more weeks and we just do not feel comfortable leaving her here. I am sure there is nothing we can do to bring to the attention of whomever the abhorrence that is this facility but we are going to do what we can to make sure that at the very least our experiences are well known by those who are considering sending a loved one to these facilities.
Mom woke up this morning like the last few and dressed and put on some makeup. Her appetite has been small lately and we attribute it to the CDIV virus she has picked up which we are told is pretty common amongst patients on IV's. Her stomach has been a bit upset but all in all she is doing pretty well physically. Mentally she wants the heck out of here.
Yesterday was a good day. She was up and dressed for the majority of the day and we had a lot of laughs. Susan and I stayed with her all afternoon and Dad once again stayed the night in the recliner. He is home today resting. A visit from Jan yesterday really cheered her up. Currently at 10:30AM she is taking a little nap. Tomorrow will be another big day as we navigate getting her moved but it will be good to have her closer to home instead of downtown here in Orlando. I am told that all rehab facilities are the same but I am hoping we find that the next will be more like our experience at Florida Hospital where the patients needs seemed to be priority number one not an inconvenience.
Thanks for letting me vent. Our next big hurdle after the move tomorrow is the biopsy Thursday. Your continued prayers, comments, calls and well wishes are appreciated and we love you all.
Friday, June 27, 2014
June 27, 2014
It's 4 PM on Friday and its been a long week. Mom has been doing well with her rehab and they say she is regaining her strength. She looks and sounds a lot better too. Only problem is that she doesn't want to be here. No surprise there. I am happy to report that in spite of everything Mom remains stubborn as a mule. I love her so much.
It's unfortunate that the place they need to send you to in order to get rest and get stronger is a cacophonous bevy of activity 24/7. She shares a room with a very nice and sweet woman who is extremely kind and only turns on the TV at night for an hour or two to watch game shows. However, right outside the door is the main corridor of bright fluorescent lights and much traffic. Patients are allowed to watch TV at all hours and last night at 2AM our neighbor next door took full advantage. Late night cop shows have not improved over the years.
Mom's spirits are a bit down but hopefully improving. She wishes she could be home but is still not strong enough to do the basics which would allow her to care for herself. She is still prone to falling and needs help getting around. I think on top of everything else her mind is filled with worse case scenarios and she is bored. She hasn't been interested in TV or reading at all. Her appetite comes and go's but for the most part she is eating well.
Yesterday she went to see the Doctor that will remove the lump for a consultation about the procedure. She is scheduled for the biopsy on Thursday July 3rd. After which it will be 24 -48 hours before we get the results. The Dr does say that no matter the outcome she should most likely be able to keep her appointment at Shands in Gainsville for treatment of her Parkinsons. The hardest part of everything is the day to day waiting and uncertainty of not knowing what's next. Each day is contingent on the previous so we sit and wait and try to make sure Mom is comfortable.
Dad has not had a lot of time for himself these past two weeks so thankfully we convinced him to go fishing with Randy tonight. I am glad that he will be able to get out and get some fresh air and have a diversion. Tonight BC and I have brought her some of her favorite wings and we plan on living it up here in room 259. I am thankful for wi-fi, my laptop and my Samsung but most of all I am thankful for my wife who has been nothing but a saint these past two weeks. Randy and I are fortunate to have wives like BC and SC who have helped so much. All in all we are all doing pretty well.
I will try to keep you up to date here on this blog. Thanks so much for the calls, posts, cards, flowers etc. Mom sends her love to everyone and mentions every day how fortunate she is to have so many great people in her life. Keep those prayers coming, we need to flood God's inbox and spam his twitter feed with good vibes for Mom. God bless you all.
It's unfortunate that the place they need to send you to in order to get rest and get stronger is a cacophonous bevy of activity 24/7. She shares a room with a very nice and sweet woman who is extremely kind and only turns on the TV at night for an hour or two to watch game shows. However, right outside the door is the main corridor of bright fluorescent lights and much traffic. Patients are allowed to watch TV at all hours and last night at 2AM our neighbor next door took full advantage. Late night cop shows have not improved over the years.
Mom's spirits are a bit down but hopefully improving. She wishes she could be home but is still not strong enough to do the basics which would allow her to care for herself. She is still prone to falling and needs help getting around. I think on top of everything else her mind is filled with worse case scenarios and she is bored. She hasn't been interested in TV or reading at all. Her appetite comes and go's but for the most part she is eating well.
Yesterday she went to see the Doctor that will remove the lump for a consultation about the procedure. She is scheduled for the biopsy on Thursday July 3rd. After which it will be 24 -48 hours before we get the results. The Dr does say that no matter the outcome she should most likely be able to keep her appointment at Shands in Gainsville for treatment of her Parkinsons. The hardest part of everything is the day to day waiting and uncertainty of not knowing what's next. Each day is contingent on the previous so we sit and wait and try to make sure Mom is comfortable.
Dad has not had a lot of time for himself these past two weeks so thankfully we convinced him to go fishing with Randy tonight. I am glad that he will be able to get out and get some fresh air and have a diversion. Tonight BC and I have brought her some of her favorite wings and we plan on living it up here in room 259. I am thankful for wi-fi, my laptop and my Samsung but most of all I am thankful for my wife who has been nothing but a saint these past two weeks. Randy and I are fortunate to have wives like BC and SC who have helped so much. All in all we are all doing pretty well.
I will try to keep you up to date here on this blog. Thanks so much for the calls, posts, cards, flowers etc. Mom sends her love to everyone and mentions every day how fortunate she is to have so many great people in her life. Keep those prayers coming, we need to flood God's inbox and spam his twitter feed with good vibes for Mom. God bless you all.
Wednesday, June 25, 2014
June 25th 2014
In the midst of chaos and strife it is easy to forget the gratitude so let me start by saying how grateful I am to have the family that I do. Without Dad's strength and the support and love of Brenda, Randale, Susan and the rest of our mazing family and friends I don't know how we would manage.
I am sorry that it has been difficult for us to keep everyone informed of Mom's recent health issues and I thank everyone for their understanding. It has been difficult at best just to keep the immediate family up to date so I thought perhaps creating this blog would provide a place where you can all check in on a regular basis for updates. We certainly appreciate all of the calls, texts and Facebook posts and apologize that we haven't been able to spend more time with you individually. Our hearts are filled with all of the love and we all appreciate and respect the power of your prayers and concerns.
Mom is currently gaining her strength back at a rehabilitation facility in Orlando called The Commons Lutheran Towers. The staff has been very good there as well as a brilliant staff that helped us at Florida Hospital North during her recent stay. We are grateful to them for their passion, knowledge and compassion.
Mom was diagnosed with a slight pneumonia and respetory infection that was brought on my her parkinsons. Apparently this is a common thing with parkinsons patients and is know as Aspiration. Basically the act of eating and drinking takes on a whole new meaning due to the deterioration of muscles and a bit of the food particle seep into her lungs causing weakness, difficulty breathing and coughing. She has been on antibiotics and has made great progress with this. In fact she is able to resume her normal eating and drinking with minor changes to her daily habits. At the start of all of this back on June 16th she was extremely weak and admitted into the hospital for evaluation and treatment. She spent a week in the hospital before being moved to the rehab facility.
She is currently undergoing treatment and physical therapy to regain her strength but is still pretty weak. She is learning to walk again with the aid of a walker but still requires a lot of attention. We are working towards getting her healthy so we can move on to phase two which brings up another concern.
Three weeks back we discovered a lump of her left breast which is pressed against the sternum which makes it very difficult to perform a routine biopsy. We are meeting with Doctors on Thursday this week to see how she is progressing so we can schedule the biopsy. They will need to perform an out patient procedure to remove the lump in order to do the biopsy. Our Doctor cannot not yet predict the outcome but said it is cause for concern. Until she is healthy enough to perform the biopsy we are all in a hurry up and wait mode and will not know anything more until the procedure is completed.
She is currently scheduled to go to Shands Hospital in Gainsville for treatment regarding her parkinsons but this too is contingent on her progress with the previous mentioned issues.
Mom's mood comes and go's. Needless to say she is frightened and concerned and anyone that knows Mom knows how much she likes to worry. We laugh at times when her concern turns to house cleaning and as usual she is always thinking about others before herself.
Speaking of others the rest of the Coble Family is doing pretty well. Dad is perhaps the strongest man I know and has been by Mom's side throughout. One of us has been able so far to be by her side throughout however she is now sleeping alone at night since there is no space for us to join her. I think Mom would be pleased by how our family has pulled together and we are making sure she knows she is not alone.
Today they resume her physical therapy. She will be in and out of her room at times but when she is strong enough she does like to talk on the phone or listen to us tell her stories of all the family and friends that have been checking up on her. She does have some trouble with motor skills so will not be on line but you can feel free to post here or on her Facebook page and we will make sure to pass along your love and prayers. It means a lot to her as well as us.
We are so blessed to have so many wonderful people in our lives. I can't express enough how much it means to us all to have your love. Mom, Dad, Brenda, Randy and Susan I love you all so much and I love all of you out there as well. Here is a link to the facility she is currently staying at if you would like to send a card or say hello. http://www.orlandoseniorhealth.org/
If anyone feels they need to reach me for anything text or Facebook works best. I stay connected at all times and can respond quicker than via phone calls.
We have a battle ahead but our resolve is strong. We will continue to move forward one day at a time and I will do my best to keep you all posted through this blog. God Bless and I will talk to you soon.
I am sorry that it has been difficult for us to keep everyone informed of Mom's recent health issues and I thank everyone for their understanding. It has been difficult at best just to keep the immediate family up to date so I thought perhaps creating this blog would provide a place where you can all check in on a regular basis for updates. We certainly appreciate all of the calls, texts and Facebook posts and apologize that we haven't been able to spend more time with you individually. Our hearts are filled with all of the love and we all appreciate and respect the power of your prayers and concerns.
Mom is currently gaining her strength back at a rehabilitation facility in Orlando called The Commons Lutheran Towers. The staff has been very good there as well as a brilliant staff that helped us at Florida Hospital North during her recent stay. We are grateful to them for their passion, knowledge and compassion.
Mom was diagnosed with a slight pneumonia and respetory infection that was brought on my her parkinsons. Apparently this is a common thing with parkinsons patients and is know as Aspiration. Basically the act of eating and drinking takes on a whole new meaning due to the deterioration of muscles and a bit of the food particle seep into her lungs causing weakness, difficulty breathing and coughing. She has been on antibiotics and has made great progress with this. In fact she is able to resume her normal eating and drinking with minor changes to her daily habits. At the start of all of this back on June 16th she was extremely weak and admitted into the hospital for evaluation and treatment. She spent a week in the hospital before being moved to the rehab facility.
She is currently undergoing treatment and physical therapy to regain her strength but is still pretty weak. She is learning to walk again with the aid of a walker but still requires a lot of attention. We are working towards getting her healthy so we can move on to phase two which brings up another concern.
Three weeks back we discovered a lump of her left breast which is pressed against the sternum which makes it very difficult to perform a routine biopsy. We are meeting with Doctors on Thursday this week to see how she is progressing so we can schedule the biopsy. They will need to perform an out patient procedure to remove the lump in order to do the biopsy. Our Doctor cannot not yet predict the outcome but said it is cause for concern. Until she is healthy enough to perform the biopsy we are all in a hurry up and wait mode and will not know anything more until the procedure is completed.
She is currently scheduled to go to Shands Hospital in Gainsville for treatment regarding her parkinsons but this too is contingent on her progress with the previous mentioned issues.
Mom's mood comes and go's. Needless to say she is frightened and concerned and anyone that knows Mom knows how much she likes to worry. We laugh at times when her concern turns to house cleaning and as usual she is always thinking about others before herself.
Speaking of others the rest of the Coble Family is doing pretty well. Dad is perhaps the strongest man I know and has been by Mom's side throughout. One of us has been able so far to be by her side throughout however she is now sleeping alone at night since there is no space for us to join her. I think Mom would be pleased by how our family has pulled together and we are making sure she knows she is not alone.
Today they resume her physical therapy. She will be in and out of her room at times but when she is strong enough she does like to talk on the phone or listen to us tell her stories of all the family and friends that have been checking up on her. She does have some trouble with motor skills so will not be on line but you can feel free to post here or on her Facebook page and we will make sure to pass along your love and prayers. It means a lot to her as well as us.
We are so blessed to have so many wonderful people in our lives. I can't express enough how much it means to us all to have your love. Mom, Dad, Brenda, Randy and Susan I love you all so much and I love all of you out there as well. Here is a link to the facility she is currently staying at if you would like to send a card or say hello. http://www.orlandoseniorhealth.org/
If anyone feels they need to reach me for anything text or Facebook works best. I stay connected at all times and can respond quicker than via phone calls.
We have a battle ahead but our resolve is strong. We will continue to move forward one day at a time and I will do my best to keep you all posted through this blog. God Bless and I will talk to you soon.
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